Visitors since May 26th, 1998
[Page updated (16:30 PST) Friday, December 1st, 2000]
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Welcome:
If anyone has suggestions for improvements, new links, or related
articles please e-mail the the page; or if you have information
on related legitimate charities or benefits that you would like
to advertise on the page.
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GoTo.com:
please utilize it for your web.net searches. GoTo pays 3 cents
for every search; I have set it up that the money that the page
makes will be donated to Retinoblastoma International, Children's
Hospital Los Angeles.
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Updates & What's New
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| 12/1 |
Article,
Inside Soap Magazine:
Actress Hunter Tylo (B&B) speaks about getting an award for
her pushing for Rb awareness; and dealing with a child with Rb. |
| 12/1 |
Article,
Inside Soap Magazine:
Actor Matthew Ashford talks about dealing with a child with Rb and
his activism for Rb Awareness. |
| 11/24 |
Information on how to
help a Sacramento Rb Survivor:
Below is information concerning the Sacramento Bee newspaper's Book
of Dreams, and how you can help Christina Parra.
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| 11/8 |
Raising
a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe Acrobat
formated book about raising a child with retinoblastoma, written
by my father. |
| 9/14 |
AB2185
Newborn Eye Screening Bill:
Has been signed by Governor Davis. |
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• Index • Index •
Index • Index • Index •
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• News
• News
• News •
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Call Retinoblastoma
International Toll Free:
1-888-353-008
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[11/26] Information
on the Benefites
I am still wating for information on the RBI golf tournament from
this past August, the Miracles 2000 benefit, and the Vistas fashion
show. When I get more information or when the RBI homepage puts
up the information I shall pass it on.
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[11/26] Information
on how to help a Sacramento Rb Survivor
Every year the Sacramento
Bee newspaper (Sacramento, CA) has its BOOK OF DREAMS.
The Bee tries to help make the hopes and dreams of local Sacramentans
come true during the holiday season. Their stories are recounted
along with their special requests; then anyone who is interested
can donate all or part of the money required to proved for the
special requests. This year 9 year-old Christina Parra is one
of the those Sacramento area folks. She is a Rb survivor. For
anyone who is interested here is the link to the main on-line
version of THE BOOK OF DREAMS.
Book
of Dreams Index and main page
In
Touch with Learning
Christina Parra's Story.
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[9/11]
AB2185 Becomes California
Law
Great news AB2185 (California), early eye screening, will be come
California law. On the 5th it was signed by Governor Davis. On the
7th it was chaptered by the Secretary of State ‹ Chapter 325, Statutes
of 2000. Click
here to access the full text of the approved bill.
To read a Sacramento Bee article on the April 26th press
conference, click here. |
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[4/12] Email
Support Group "Kid's Eye Cancer Friends":
"An Open Forum for Friends and Family of people affected
by retinoblastoma, an eye cancer found in infants. Provided as
a service of KidsEyeCancer.org and Retinoblatoma Interntional."
Click
here,
www.onelist.com/community/kidseyecancerfriends,
to join the list. The mailing list is sponsored by EGroups,
[Note: "eGroups is a free email group service that
allows you to easily create and join email groups."] |
Miracles
1999:
To view photo's from and read more about this past November's Miracles
Benefit click
here. |
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•
Events •
Events • Events
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• Articles
• Articles
• Articles •
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[12/1] Article,
Inside Soap Magazine:
"Hunter's Campaign":
Actress Hunter Tylo (B&B) speaks about getting an award for
her pushing for Rb awareness; and dealing with a child with Rb.
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[12/1] Article,
Inside Soap Magazine:
"Real Life Drama for Ex-Jack":
Actor Matthew Ashford talks about dealing with a child with Rb and
his activism for Rb Awareness. |
[11/8 ]
Raising a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe
Acrobat formated book about raising a child with retinoblastoma,
written by my father.
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"Designing
with Disabilities in Mind":
This article is from a WebSideSTORY email newsletter. It has important
information on how to make websites more user friendly for people
who are visually impaired. |
"LA
Life" Article:
from the Daily News (8/3/898) interviews, with Ashford family,
&A. Linn Murphree, M.D., director of the Retinoblastoma center
at the Children's Hospital of Los Angeles. |
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WebMD:
Transcriptions of a recent interview by Dr. Murphree, Director
of the Retinoblastoma International, at the Children's Hospital
Los Angeles. |
Sunday
in the Park with George
Benefit:
To read a first hand account of the benefit which took in nearly
$10,000!!! |
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•
Links •
Links
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| Retinoblastoma
Pages |
A
Brief Guide to RB on the Web.
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A
Brief Guide to RB on the Web.
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 Retinoblastoma
International:
This is the BEST source of information on the web.
It is the official homage of RBI, "Founded by A. Linn
Murphree, MD, & the Director of the Retinoblastoma Center
at Children Hospital Los Angeles and is located at Children
Hospital Los Angeles." The page has recently been upgraded,
and new features are being added all the time. |
Kari's
Story:
Kari passed away from Retinoblastoma after undergoing treatment
for it for several years. Her mom Sharon wrote a book entitled
Perfect Vision. This link will take you to a brief
story of Kari, as well as a link to how to buy the book, part
of the profit of which goes to CURE Childhood Cancer Association. |
Mike's Life With Retinoblastoma:
Page written and maintained by the parent of a child with
Retinoblastoma. |
National
Retinoblastoma Parent Group. |
[11/8 ]
Raising a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe
Acrobat formated book about raising a child with retinoblastoma,
written by my father. |
Die
Retinoblastom - Seite:
A very comprehensive site in German.
Includes information and a very extensive link to related
pages. |
Retinoblastoma
at the Digital Journal of Ophthalmology at the Harvard
Medical School site. |
[9/2] Soda
Pop
A great site for siblings of disabled
kids.
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| St.
Jude's |
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Miscellaneous Pages
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 ABC's
of Parenting:
Is devoted to providing websurfers with reviews and ratings
of the absolute best websites of interest to families and
parents-to-be. |
The
Matthew Ashford Homepage:
Page dedicated to actor Matthew
Ashford. Matthew and his wife, Christina, were
co-chairs of last year's benefit. Their daughter Emma has
been diagnosed is Rb. |
Computer links:
Links to various computer
products companies;
and Internet, and web service provides.
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