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If anyone has suggestions for improvements, new links, or related articles please e-mail the the page; or if you have information on related legitimate charities or benefits that you would like to advertise on the page.
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Sally A. Wilson,
Sally
e-mail: sally@remarque.org
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GoTo.com:
please utilize it for your web.net searches. GoTo pays 3 cents for every search; I have set it up that the money that the page makes will be donated to Retinoblastoma International, Children's Hospital Los Angeles.

Updates & What's New
12/1 Article, Inside Soap Magazine:
Actress Hunter Tylo (B&B) speaks about getting an award for her pushing for Rb awareness; and dealing with a child with Rb.
12/1 Article, Inside Soap Magazine:
Actor Matthew Ashford talks about dealing with a child with Rb and his activism for Rb Awareness.
11/24 Information on how to help a Sacramento Rb Survivor:
Below is information concerning the Sacramento Bee newspaper's Book of Dreams, and how you can help Christina Parra.
11/8 Raising a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe Acrobat formated book about raising a child with retinoblastoma, written by my father.
9/14 AB2185 Newborn Eye Screening Bill:
Has been signed by Governor Davis.


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Forum Page Donation Form


NewsNews News
Call Retinoblastoma International Toll Free:
1-888-353-008
 

[11/26] Information on the Benefites
I am still wating for information on the RBI golf tournament from this past August, the Miracles 2000 benefit, and the Vistas fashion show. When I get more information or when the RBI homepage puts up the information I shall pass it on.

[11/26] Information on how to help a Sacramento Rb Survivor
Every year the Sacramento Bee newspaper (Sacramento, CA) has its BOOK OF DREAMS. The Bee tries to help make the hopes and dreams of local Sacramentans come true during the holiday season. Their stories are recounted along with their special requests; then anyone who is interested can donate all or part of the money required to proved for the special requests. This year 9 year-old Christina Parra is one of the those Sacramento area folks. She is a Rb survivor. For anyone who is interested here is the link to the main on-line version of THE BOOK OF DREAMS.

Book of Dreams Index and main page

In Touch with Learning Christina Parra's Story.

 
[9/11] AB2185 Becomes California Law
Great news AB2185 (California), early eye screening, will be come California law. On the 5th it was signed by Governor Davis. On the 7th it was chaptered by the Secretary of State ‹ Chapter 325, Statutes of 2000. Click here to access the full text of the approved bill.

To read a Sacramento Bee article on the April 26th press conference, click here.
 
[4/12] Email Support Group "Kid's Eye Cancer Friends":
"An Open Forum for Friends and Family of people affected by retinoblastoma, an eye cancer found in infants. Provided as a service of KidsEyeCancer.org and Retinoblatoma Interntional." Click here,
www.onelist.com/community/kidseyecancerfriends, to join the list. The mailing list is sponsored by EGroups, [Note: "eGroups is a free email group service that allows you to easily create and join email groups."]
Ashford Family  Miracles 99

Miracles 1999:
To view photo's from and read more about this past November's Miracles Benefit click here.

Events EventsEvents

ArticlesArticles Articles
[12/1] Article, Inside Soap Magazine:
"Hunter's Campaign":

Actress Hunter Tylo (B&B) speaks about getting an award for her pushing for Rb awareness; and dealing with a child with Rb.


[12/1] Article, Inside Soap Magazine:
"Real Life Drama for Ex-Jack":

Actor Matthew Ashford talks about dealing with a child with Rb and his activism for Rb Awareness.

[11/8 ] Raising a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe Acrobat formated book about raising a child with retinoblastoma, written by my father.

 
"Designing with Disabilities in Mind":
This article is from a WebSideSTORY email newsletter. It has important information on how to make websites more user friendly for people who are visually impaired.
"LA Life" Article:
from the Daily News (8/3/898) interviews, with Ashford family, &A. Linn Murphree, M.D., director of the Retinoblastoma center at the Children's Hospital of Los Angeles.
 
WebMD:
Transcriptions of a recent interview by Dr. Murphree, Director of the Retinoblastoma International, at the Children's Hospital Los Angeles.
Sunday in the Park with George Benefit:
To read a first hand account of the benefit which took in nearly $10,000!!!

Links Links Links
Retinoblastoma Pages
A Brief Guide to RB on the Web.

A Brief Guide to RB on the Web.

RBI SymbolRetinoblastoma International:
This is the BEST source of information on the web. It is the official homage of RBI, "Founded by A. Linn Murphree, MD, & the Director of the Retinoblastoma Center at Children Hospital Los Angeles and is located at Children Hospital Los Angeles." The page has recently been upgraded, and new features are being added all the time.
Kari's Story:
Kari passed away from Retinoblastoma after undergoing treatment for it for several years. Her mom Sharon wrote a book entitled Perfect Vision. This link will take you to a brief story of Kari, as well as a link to how to buy the book, part of the profit of which goes to CURE Childhood Cancer Association.


Mike's Life With Retinoblastoma
:
Page written and maintained by the parent of a child with Retinoblastoma.
National Retinoblastoma Parent Group.

[11/8 ]
Raising a Child with Rb:
An excellent web cite wit a link to a PDF (Adobe Acrobat formated book about raising a child with retinoblastoma, written by my father.
Die Retinoblastom - Seite:
A very comprehensive site in German. Includes information and a very extensive link to related pages.
Retinoblastoma
at the Digital Journal of Ophthalmology at the Harvard Medical School site.
[9/2] Soda Pop
A great site for siblings of disabled kids.

St. Jude's
 

Miscellaneous Pages
ABC of Parenting SymbolABC's of Parenting:
Is devoted to providing websurfers with reviews and ratings of the absolute best websites of interest to families and parents-to-be.
The Matthew Ashford Homepage:
Page dedicated to actor Matthew Ashford. Matthew and his wife, Christina, were co-chairs of last year's benefit. Their daughter Emma has been diagnosed is Rb.



Computer links:
Links to various computer products companies;
and Internet, and web service provides.




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